The MND diary project
Nov 2021: The MND diary project is a 3 year research project investigating coping and resilience among people living with MND.
The project is being run by Nicola Glennie, an ESRC funded postgraduate researcher, who is the first member of the Euan MacDonald Centre to join from the University of Stirling.
Nicola explained the reasoning behind the project. "Often healthcare for people living with MND focuses upon treating the physical symptoms of the illness, but a diagnosis of MND can have wide ranging effects upon both working lives and family lives. I am interested in hearing people's stories about the challenges they have faced, and how they have dealt with these challenges in their daily lives. By listening to people's experiences and exploring the things that have helped, the things that have hindered, and the things that just got people through, I'm hoping to build up a picture of the ways people have of coping, and use this to inform future healthcare."
At present, Nicola is looking for people living with MND who would be interested in sharing their stories by taking part in interviews, and/or keeping a diary of their experiences over 3 months. People can take part from home and choose the way they would like to take part. It can be online, by phone calls or even by post.
If you are interested in finding out more, please download the MND diary project flyer. You can also have a look at the project blog or contact Nicola directly on 01786 466 385 or by emailing n.e.glennie@stir.ac.uk.
(The MND diary project is a research study with ethical approval from the University of Stirling).